My Disabled Life Is Worthy
[Graphic: Disability Visibility – African Americans]
By Olivia Alperstein
Source: Other Words
While roughly 40% of our adult population spouts off about their “freedom” to not wear a mask or get vaccinated, for so many of our population these “ME” people are a direct threat to us. It is so hard to not take it personally when I see someone without a mask or spouting off about their “right” to not follow public health directives. We could write it off as people being self-centered, but it is a self-focus that risks so many – including their own children. Meanwhile I, and many like me, are perpetually stuck at the beginning of this pandemic struggling to protect ourselves in a country that could give a damn if their “freedom” is potentially lethal to many around them. I am in the roughly 1% of the population that is immune-compromised or suppressed; however, many more than that move in and out of this group because they are temporarily on immune system suppressing drugs – like steroids for pneumonia, allergic reactions, or (illegally) for sport “performance”.
I don’t believe it is anyone’s “right” to risk the health and life of those around them. This is individualism run amok, a population developmentally stuck at 5 years old, or both. As such it is not just a health risk, it is a threat to democracy. We are not worth less than the non-disabled.
Olivia Alperstein
Ever since the beginning of the pandemic, there’s been a disturbing caveat to the casualty reports. Many of the dead, the reports say, had “comorbidities” — other conditions that left them especially vulnerable to the virus.
This is true, and it needs to factor into our public health response. Instead, it’s often used to suggest that the loss of these lives is somehow less serious — and more acceptable.
“The overwhelming number of deaths” among vaccinated people, CDC director Dr. Rochelle Walensky told Good Morning America about a recent study, “occurred in people who had at least four comorbidities, so really these are people who were unwell to begin with.”
She added: “We’re really encouraged by these results.”
I have a bunch of fun “comorbidities” myself, including rheumatoid arthritis. As a vaccinated but immunocompromised person, I was less “encouraged” — and I was deeply saddened by that choice of words.
So too, I’m guessing, were people with chronic obstructive pulmonary disease or congenital heart disease. Language like this can also be incredibly hurtful to parents of children with conditions like leukemia, or caregivers of people with conditions like Alzheimers.
At least one out of every four Americans has a disability — so if you’re not disabled yourself, you probably know and love someone who is. For us, it’s hard not to hear the subtle messaging behind messages like these: “My disabled life is less worthy.”
Unfortunately, a surprising number of people seem to agree it wouldn’t be so bad if the world population was culled a bit. It’s not just the Nazis, who famously exterminated people with disabilities and mental illnesses. Instead, these attitudes can appear in more subtle ways.
For example, they can show up when hospital staff are forced to prioritize who to save in emergency health situations, in part by making heart-wrenching decisions about who’s more likely to survive.
Like others, I have both disabled and non-disabled family and friends who went into a hospital for non-COVID emergencies and never made it out alive. And I have multiple friends who’ve made advance directives during the pandemic, assuming they’re more likely to face respiratory failure or intubation if they contract COVID-19.
These attitudes can also show up in the debate over pandemic school closures. A return to in-person learning may be an acceptable risk for healthy, vaccinated students and staff. But what about those who are disabled, immunocompromised, and at higher risk of death if they return to classroom instruction?
The pandemic has likely increased the number of people with serious health conditions. Alongside those suffering from prolonged COVID-19 complications, many other Americans have been forced to delay “elective” surgeries like organ transplants or cancer treatments because of our chronically full hospitals.
As these challenges touch more and more of us, we shouldn’t be pitting parents, educators, patients, or health care workers against each other. Instead, we need policies that better protect all of us.
For starters, we need more chronically ill, immunocompromised, and disabled people in CDC leadership positions. And the CDC could take the advice of disabled people who’ve reached out since the start of the pandemic to help others learn how to protect their own health, survive, and advocate for better health policies.
Just as pressingly, we need a pandemic response that fully addresses hospitals’ supply and staffing shortages, ensures access to tests and vaccines for all, and puts the voices of disabled people exactly where they should be: at the center of every health policy decision.
My disabled life is worthy. All our lives are worthy.
Olivia Alperstein is the media manager at the Institute for Policy Studies. This op-ed was distributed by OtherWords.org.